“Just so everyone is aware, there is a bunch of misleading info being spread around re: ALS research - the “27%” figure is based on previous years’ annual funding; furthermore, the remainder goes to improving the quality of life of those suffering from ALS. Given that the annual funding is approximately 16M, that’s just over 4M spent on decreasing their suffering. It isn’t greed, it’s a lack of money.”
Shut up already.
The ALS Association has a 4-star rating from Charity Watchdog.
And the next time you start to complain about a charity either a) working on multiple fronts (because that’s what ALSA does—both seeking a cure and helping people suffering now) or b) daring to have administration expenses—let’s see how long you can last, much less tackle a cause, without printer paper and an internet connection.
As someone who has watched a family member die from a neuro-degenerative disease; funding to develop better wheelchairs and bedsore creams is *just* as important as funding research to cure the disease itself…
A friend of mine posted an update from one of HER friends to FB earlier. Her dad has ALS. The ALS foundation came out to see if they could put in a ramp for his wheelchair, but they couldn’t afford it because of the kind of ramp he needed for the kind of house they had.
This week they called back and said hey, the thing is, we suddenly have a bunch of money, so we’re coming out to build that ramp. And they did. She posted pics.
So if you feel like bitching about the ice bucket challenge…reconsider.
News flash: Charities for illnesses don’t just fund research and medicine! Believe it or not, there are people who actually have the illnesses charities like the ALS Foundation are looking to treat and cure! Guess what? Future diagnoses of an illness aren’t the only thing these charities are looking to help! Those who currently struggle with these diseases need just the same amount of help! And you know what? Just being diagnosed with something like ALS doesn’t automatically set your life up to be hopeless, especially when charities like the ALS Foundation are actively seeking to help you with their being funded!
Let me tell you something about when I helped raise money for the American Cancer Society back in high school. I stood outside Walmart - you know, the happiest place on earth - in the 100 degree summer heat with one of my best friends, who is a cancer and heart transplant survivor, to raise money for our Relay for Life team. One woman, when asked if she would like to make a donation, proceeded to berate us for raising money for the American Cancer Society because only a small portion of the funding goes to research and cures. I cannot express how hurtful it was that not only was she refusing to give us money, which would have been fine because when you do charity work like this you just get used to people ignoring you and turning you down, but she also proceeded to act all high and mighty because her idea of what charity work should be was the only thing a charity could possibly do. As if the money we raised didn’t go to help anyone just because only a small portion was used to fund research when, standing right next to me, was living and breathing proof that donations DO go to help people.
So seriously, do YOUR research when it comes to charities. They do a lot more work than you’re even aware of.